Have you tried … Have you tried physical therapy. This spring my neurologist finally referred me to a Continence Clinic and I went through a similar testing process as you described. They gave me the three options, self catheterizing, medication, or physical therapy. The physical therapy has helped so much as well as taking a mixture of 1 c oat bran, 1 c applesauce, and 1/4 c prune juice (2 tbsps every evening with water- then increase to 3 and 4 tbps) as I also had a lot of strain with BMs.
Are you eligible … Are you eligible for SSDI (Social Security) and going on disability? IF so, you will get medicare with that and you can get fresh catheters for each cath. Medicare will also provide you with your leak protection. Did your work offer long-term disability and did you sign up for that. If so, it may be time to explore retirement. My neurologist encouraged me to do that and helped me through the process.
Cool., I am glad it … Cool., I am glad it helped!. Be well and don’t every worry about cathing — piece of cake and will make life a lot easier!!! – Diana
my urologist is … my urologist is thinking of doing the interstim device on me should I do it or is it not worth it she isnt even confident that it will work that well?
How are you doing … How are you doing dncr2beeee? I hope you are adjusting well and living life. If you were diagnosed with MS, just stay on top of it. Even with the cathing, stay on top of it and stay clear of UTI’s. That’s the goal.
been there did this … been there did this excet for the cather now if they would have given them to me back when i needed then bad would have helped now i have the interstim deviced placed in, the pacemaker really doent do well for me, what a waste i hate having this problem and pain comes with this bladder spasms, pain manage ment doent understand and i just got back to work pee all day and wear leak protection, what do i do i dont have insurance anymore but i know i need it
OH MY GOSH I cannot … OH MY GOSH I cannot thank you enough for posting this it is my exact story I am 22 and getting ready to see a neurologist to see if it is MS for sure but I got UTI after UTI hospitalized 3 times and found I was not emptying my bladder I cath every 4-6 hours during the day and maybe once at night I am scared to death that it is MS I had a cystoscopy and urodynamics test done along with a cystogram but my GP is pretty sure it is MS because of the bladder issues and the fatigue THANK YOU THANK YOU
Thank you Chocar1, … Thank you Chocar1, the tests are not bad at all. Understanding what the tests are about will help you to feel more comfortable about them. For a cystoscopy, they use a lidocaine jelly for the scope-this helps. For Uro-dynamic testing, the most difficult part is having to hold liquid into your bladder as long as you can. The toilet is very high-tech. The tests are very helpful. No need to be afraid of the tests or the catheters if you have to use them. Piece of cake.
Best wishes,
Diana
Oh G*d PEE PROBLEMS … Oh G*d PEE PROBLEMS have suffered from it since 1990. Last UTI triggered an exacerbation yeeek!
Love and best to you,
aefardisafran
hoboken nj
I’m a 53 y/o male … I’m a 53 y/o male and i’ve had MS for over 16 yrs, i start self cath-ing next week. Thanks for your comments and positive perspective. Now I have a bit more courage going into this – pardon the pun.
drainage apliance … drainage apliance at night. This was something like a man’s athletic supporter (jock strap). The difference was the “jock strap” had a rubber sheath that enclosed my penis. Attached to the sheath was a urine collection bag. The collection bag would often be so full in the moring that I guessed I had urinated three or four times while I was asleep. First I had a cystoscopic exam just like you. This was some twenty years ago and the flexible cystoscopes of today hadn’t been invented.
I’m a male Spina Bifida survivor and have always had a neurogenic (malfunctioning) bladder. Self catherization has been a real blessing for me.
Just like you I suffered from incomplete bladder emptying. My bladder capacity was about normal but I could only could void about one-fourth of the urine that was in it when it was completely full. As a result I had to void about four time as often as someone with a normal bladder – about sixteen times a day. Worse still I had to wear a
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Kegelmaster.
There is no technique or competitive product at any price that
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2000 (www mykm.com). It?s like a
Stair-Master for your PC muscles.? After only three weeks, Rachel
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bigger big 0
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the best was yet to come (literally!): ?Just two months after I started
the Kegel exercises, I began having these really intense all-body orgasms
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his thrusts,? she reports. ?With this new kind of orgasm, there?s a
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like I can?t keep going because it?s too intense. But once I give in
to that overwhelming feeling and continue, that?s when I have these
amazing, well, body spasms?and it just feels good beyond words.?
I take some time out to discuss bladder issues in MS and self-intermittent catheterization.
20 Responses
elizabethmcl
2009 Sep 15 1Have you tried …
Have you tried physical therapy. This spring my neurologist finally referred me to a Continence Clinic and I went through a similar testing process as you described. They gave me the three options, self catheterizing, medication, or physical therapy. The physical therapy has helped so much as well as taking a mixture of 1 c oat bran, 1 c applesauce, and 1/4 c prune juice (2 tbsps every evening with water- then increase to 3 and 4 tbps) as I also had a lot of strain with BMs.
gkygrl
2009 Sep 15 2Are you eligible …
Are you eligible for SSDI (Social Security) and going on disability? IF so, you will get medicare with that and you can get fresh catheters for each cath. Medicare will also provide you with your leak protection. Did your work offer long-term disability and did you sign up for that. If so, it may be time to explore retirement. My neurologist encouraged me to do that and helped me through the process.
gkygrl
2009 Sep 15 3Cool., I am glad it …
Cool., I am glad it helped!. Be well and don’t every worry about cathing — piece of cake and will make life a lot easier!!! – Diana
FritoCat
2009 Sep 15 4Thank you so very …
Thank you so very much for this video. I am going through this right now and your video helped me understand it a lot better.
dncr2beee
2009 Sep 15 5my urologist is …
my urologist is thinking of doing the interstim device on me should I do it or is it not worth it she isnt even confident that it will work that well?
gkygrl
2009 Sep 15 6How are you doing …
How are you doing dncr2beeee? I hope you are adjusting well and living life. If you were diagnosed with MS, just stay on top of it. Even with the cathing, stay on top of it and stay clear of UTI’s. That’s the goal.
Sending a prayer.
Diana
poisonivy285
2009 Sep 15 7been there did this …
been there did this excet for the cather now if they would have given them to me back when i needed then bad would have helped now i have the interstim deviced placed in, the pacemaker really doent do well for me, what a waste i hate having this problem and pain comes with this bladder spasms, pain manage ment doent understand and i just got back to work pee all day and wear leak protection, what do i do i dont have insurance anymore but i know i need it
HatchetredSarah
2009 Sep 15 8urodynamics
urodynamics
dncr2beee
2009 Sep 15 9OH MY GOSH I cannot …
OH MY GOSH I cannot thank you enough for posting this it is my exact story I am 22 and getting ready to see a neurologist to see if it is MS for sure but I got UTI after UTI hospitalized 3 times and found I was not emptying my bladder I cath every 4-6 hours during the day and maybe once at night I am scared to death that it is MS I had a cystoscopy and urodynamics test done along with a cystogram but my GP is pretty sure it is MS because of the bladder issues and the fatigue THANK YOU THANK YOU
mgresham3
2009 Sep 15 10This is so my story …
This is so my story too. I wish I had this when I started cathing. Great video. It will help many.
123stalk
2009 Sep 15 11Thank you so much.
Thank you so much.
chocara1
2009 Sep 15 12Yea, I think I may …
Yea, I think I may be going through the worst now, between urology and Renal clinics. Thanks and best wishes to you also…
gkygrl
2009 Sep 15 13Thank you Chocar1, …
The tests are very helpful. No need to be afraid of the tests or the catheters if you have to use them. Piece of cake.
Thank you Chocar1, the tests are not bad at all. Understanding what the tests are about will help you to feel more comfortable about them. For a cystoscopy, they use a lidocaine jelly for the scope-this helps. For Uro-dynamic testing, the most difficult part is having to hold liquid into your bladder as long as you can. The toilet is very high-tech.
Best wishes,
Diana
chocara1
2009 Sep 15 14Great video! YOu …
Great video! YOu should start doing lectures on how to use those, you went into great detail. Were any of those test painful????
Sefardisafran
2009 Sep 15 15Oh G*d PEE PROBLEMS …
Oh G*d PEE PROBLEMS have suffered from it since 1990. Last UTI triggered an exacerbation yeeek!
Love and best to you,
aefardisafran
hoboken nj
monsterfromspace
2009 Sep 15 16I’m a 53 y/o male …
I’m a 53 y/o male and i’ve had MS for over 16 yrs, i start self cath-ing next week. Thanks for your comments and positive perspective. Now I have a bit more courage going into this – pardon the pun.
stevehowerchuk
2009 Sep 15 17drainage apliance …
drainage apliance at night. This was something like a man’s athletic supporter (jock strap). The difference was the “jock strap” had a rubber sheath that enclosed my penis. Attached to the sheath was a urine collection bag. The collection bag would often be so full in the moring that I guessed I had urinated three or four times while I was asleep. First I had a cystoscopic exam just like you. This was some twenty years ago and the flexible cystoscopes of today hadn’t been invented.
stevehowerchuk
2009 Sep 15 18Hi Dianna,
I’m …
Hi Dianna,
I’m a male Spina Bifida survivor and have always had a neurogenic (malfunctioning) bladder. Self catherization has been a real blessing for me.
Just like you I suffered from incomplete bladder emptying. My bladder capacity was about normal but I could only could void about one-fourth of the urine that was in it when it was completely full. As a result I had to void about four time as often as someone with a normal bladder – about sixteen times a day. Worse still I had to wear a
Sefardisafran
2009 Sep 15 19It sounds like ME! …
It sounds like ME! with MS for 30 years now is VERY progressive. Hope the best to you.
LuisM
Hoboken NJ
USA
MCwarriors2010
2009 Sep 15 20the test is …
the test is Uro-Dynamic Testing. I’ve had tons of them.
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If you wish to alleviate and prevent , stress incontinence, urge incontinence (overactive bladder-frequency), pelvic pain, bladder prolapse (cystocele), uterine prolapse,
rectocele, or sexual dysfunction or if you simply want to achieve the maximum benefits from "kegel exercises", we offer you a genuine breakthrough solution.
The patented Kegelmaster?, the world's first and only true progressive resistance vaginal exerciser, with 15 adjustable strength settings,
has been tested and recommended by leading luminaries in the field of female incontinence. The nationally syndicated, award winning "Bob & Tom Show", without our paying for a single advertisement, has talked about the Kegelmaster? for over a year because of its ability to stop female incontinence, and for the sexual benefits. It was referred to as "rather miraculous" in the "The Doc is In" Sexual Advice column in Underwire Magazine.
In a product comparison conducted in the January, 2003 issue of Marie Claire Magazine (reprinted in the Discussion Forum) the Kegelmaster? tested #1.
Kegelmaster? WorldWide, is the premier distributor for this groundbreaking device, which has no equal.
We ship the same or the following business day, and include with your Kegelmaster?:
The one and only TRUE Kegelmaster
Warning!
The generic "Kegel Exerciser" is a poor imitation of our patented product, not possibly being able to work as well.
More details about this and other competitive devices in the Discussion Forum.
Beware of cheap, ineffective, fraudulent imitations! If it does not have 15 strength settings and does not have a completely adjustable knob, it is not a genuine Kegelmaster.
There is no technique or competitive product at any price that compares to the genuine Kegelmaster. There are other products such as vaginal weights and cones that are tedious to use,
and there are conventional "kegel exercises", likewise tedious, but there is nothing to rival the Kegelmaster and slowly but surely the world is finding out!
First Magazine (Nov. 11, 2002)
Click Here to read the entire article.
Here, the story of Rachel, 32, married six years, who swears by it.
That?s what Rachel, like
?Two months after I started the Kegel
exercises,
intense
all-body
orgasms.
I began having
So when a friend told her that these pubococcygeus (PC) flexes, called Kegel exercises (which involve nothing more than squeezing that hold back urine), could make sex absolutely amazing, Rachel hit the Internet, eager to learn more. ?I found out how easy it is to strengthen my muscles on my own,? she says. ?And just for fun, I also bought the Kegelmaster 2000 (www mykm.com). It?s like a Stair-Master for your PC muscles.? After only three weeks, Rachel noticed a huge improvement in her orgasms: ?They felt a lot better, and I had them more often.?
A bigger big 0
But the best was yet to come (literally!): ?Just two months after I started the Kegel exercises, I began having these really intense all-body orgasms that were triggered by
his thrusts,? she reports. ?With this new kind of orgasm, there?s a
pleasurable pressure that starts building, and as it increases, I feel
like I can?t keep going because it?s too intense. But once I give in
to that overwhelming feeling and continue, that?s when I have these
amazing, well, body spasms?and it just feels good beyond words.?
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